practicality: (Gwendal | knitting)
I am sick and tired of being sick and tired with no explanation. I'm tired of the near-constant brainfog, of wanting to sleep twelve hours a night, of coming home from work and not having the energy to do anything but sit on the sofa and stare at the internet. None of this is new. This has been the last eight years of my life, with increasing severity.

What's new is that I've lost twenty-five pounds in a month and a half, without changing what I eat or how I exercise (in fact, I've been eating more). My fingernails have started breaking all the time. I sweat in my sleep.

I've had piles of tests done. I could give a laundry list of things that aren't wrong with me, because all of them have come back normal. And GPs just look at me and shrug and say things like 'it's probably stress' or 'you need to exercise more' and it's just... no. Something is wrong. And nobody knows what it is, or has the decency to straight-up say 'yeah, there's something wrong here but I can't tell you what' instead of making me feel like a paranoid hypochondriac, which, by the way, is a really shitty thing to do to someone with anxiety disorders.

Date: 2012-05-19 10:50 pm (UTC)From: [identity profile] 0jack.dreamwidth.org
Exactly what Syne said. I've had the same damn issue getting my alternate thyroid levels tested in Ontario. If you are feeling so crap, and if you're able to, you might consider having someone accompany you who can make sure the point is made. Or, alternately, you can lie outright and say you found out that some aunt/cousins have thyroid issues and no one ever talked about it, etc, and so you'd like more testing.

Other levels that are worth testing include testosterone, if you are feeling that exhausted. I'm assuming you had your iron levels and blood sugars done? I'm really sorry you feel so horrible. I have low-but-normal thyroid myself, as well as Vitamin B deficiency and anemia. It's very scary to feel this way.

Date: 2012-05-19 10:57 pm (UTC)From: [identity profile] momijizukamori.dreamwidth.org
I may just have to pre-compose what I'll say in my head. I have extended medical from work so cost isn't an issue, it's just getting someone to order them. My mother actually has Graves' Disease so there's a very logical correlation here that... isn't showing on the TSH tests.

I have had blood sugar, B12, potassium, kidney and liver function, and hematology panels done (along with some testing of various viruses - I can happily say I don't have Hep C). I've been iron-deficient anemic in the past, but the blood tests have been fine the last three or four years. Hemoglobin was on the low end of normal this last time, but I feel way more crap than I did when I was actually a fair bit below normal.

Date: 2012-05-19 11:15 pm (UTC)From: [identity profile] 0jack.dreamwidth.org
Did they check you for celiac? :( It can sneak up on you. I'm so sorry, again, that all this is so bad. I really hope they get somewhere with your next appointment. <3

Date: 2012-05-19 11:17 pm (UTC)From: [identity profile] momijizukamori.dreamwidth.org
No, that's one of the few things I haven't been tested for *G*

And it's one of those situations where I'm pretty sure I'm not in danger of idk dying or something, but it's really, really frustrating

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